|History/Background||History/Background | Family Stories | Contact Us | GLOSSARY OF TERMS | WOLF-HIRSCHHORN SYNDROME (4P-) | CHROMOSOME 4 RING | CHROMOSOME 4, PARTIAL TRISOMY DISTAL 4q | Chromosome 4, Monosomy 4q | Chromosome 4, Trisomy 4p | Pitt-Rogers-Danks Syndrome | In Memory of our Children|
|Priority 4 Families Support Group||
Who We Are, Where Were Goin'
Priority 4 Families, Formerly the Wolf-Hirschhorn Syndrome (4p-) Support Group and Newsletter, is an organization dedicated to educating parents, foster parents, caregivers and professional with Chromosome 4 Abnormalities, along with networking parents to parents.
In 1990, Brenda Grimmett founded & started the support group "Wolf-Hirschhorn (4p-) Support Group & Newsletter" the newsletter was called "Dancin' with Wolf's". After the diagnosis of A.J. in 1987, doctors gave little information and hope for AJ. After searching for other families with WHS, Brenda found a parent (Becky Richardson) that had organized a parent-to-parent support group with biographies on other WHS children. The bio's helped but Bob & Brenda felt that there needed to be more to offer families, that sparked the idea of starting the first U.S. support group for Wolf-Hirschhorn (4P-) Syndrome. The group started out with only 43 families known at that time, ten years later there are 400 plus families worldwide.